I have had a nice morning and a very sleepy afternoon and evening. I’m tired of being sleepy, and I have found nothing I can do about it.
I woke up this morning after a solid eight hours’ sleep and got through my morning routine just fine. My meditation is going very well. I picked up some free meditation apps for my little tablet and have been meditating to music daily. That gives me serenity and clarity I value. I have also begun to eat oatmeal for breakfast, which gives me nutrition quickly and costs next to nothing. The bus downtown ran on time, not early, which helps.
I have “hypersomnia.” That just means “sleeps too much” (in the daytime) and is the term the experts use when they don’t know the cause, except that it’s not narcolepsy. I got my diagnosis after a 20-hour test in a sleep lab. That proves I have hypersomnia, but does nothing to treat it.
After the morning meeting, I caught the 10:30 #10 back here. I first noticed a little drowsiness as we cruised through Franklinton, and by 11:30 I knew I was not going to do much right away. I just needed to be alert enough to fix lunch safely. I got through that. Two or three more cups of coffee beyond the one at the meeting did nothing to change my drowsiness, and I took two naps during the afternoon, with more cups of coffee between them. I finally awoke relatively refreshed around 5:30 pm. I watched a little news, figured out how to hear the radio broadcast of the Indians baseball game online (very low volume, but workable; they won with a walk-off hit), and turned on Bluegrass Ramble from WOSU Public Radio, streaming online. Somewhere in all that, I fell back into the drowsiness and am just now (8:30 p.m or 20:30) coming out of it. I have not had a hypersomnia day this bad in quite some time, probably three months or more. Back then, I was taking Vyvanse for it, which did little to change anything.
I have had enough caffeine today to make a statue nervous, and that doesn’t even keep me from falling asleep. If I didn’t lie down, I would nod off and end up falling off my chair like a drunk dropping from a bar stool. I would rather fight this, and I do when I can. It was wasted effort today.
I don’t want to be helpless any more than anyone else, but in this I am. Unless and until someone can figure out what causes this and do something about it, I’m as disabled as I would be if I had uncontrolled seizures or some other similar issue. Don’t get me wrong. I’m glad I don’t have seizures or some painful illness, but any time I don’t take this seriously I’m reminded of just how serious it is. I have no pain from it, but I lose time to it and I must recognize the threat to my safety if I try to drive or do anything at all requiring alertness at times when I cannot be alert.
Ok, rant over for now.